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IOF International Osteoporosis Foundation

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rare-diseases

New taxonomy of non-skeletal rare disorders with impact on bone 

Thanks to major progress in the understanding and management of rare congenital diseases and syndromes, many patients with these rare disorders are now living longer lives. With this progress it ...

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January 11, 2021
IOF SRD Academy Award 2020

La primeros premios de Academia de Enfermedades Raras Esqueléticas de la IOF reconocen la excelencia en la investigación

Hoy, durante el Congreso Mundial 2020 sobre Osteoporosis, Osteoartritis y Enfermedades Musculoesqueléticas, cinco investigadores recibieron los primeros premios de la Academia de Enfermedades Esqueléticas Raras de la International Osteoporosis ...

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August 21, 2020
Calcified Tissue International

Expertos explican los últimos conocimientos sobre el metabolismo del fosfato y trastornos relacionados 

Las revisiones invitadas desarrolladas por investigadores líderes brindan información de vanguardia sobre los mecanismos subyacentes del metabolismo del fosfato y discuten los avances en el conocimiento y el manejo de ...

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August 18, 2020
IOF Skeletal Rare Diseases Academy

IOF announces launch of Skeletal Rare Diseases Academy 

Ver esta noticia en español

The International Osteoporosis Foundation (IOF) has announced the launch of a new initiative to promote awareness, provide education and training, and support research advances related ...

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August 19, 2020
Calcified Tissue International

Experts elucidate latest knowledge on phosphate metabolism and related disorders

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Remarkable progress in our understanding of phosphate metabolism has been made over the last two decades, and this in turn has led to significant advances ...

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August 17, 2020
2020 IOF Skeletal Rare Diseases Academy Awards

First IOF Skeletal Rare Diseases Academy Awards recognize research excellence

Today, at the 2020 World Congress on Osteoporosis, Osteoarthritis and Musculoskeletal Diseases, five investigators were awarded the first International Osteoporosis Foundation (IOF) Skeletal Rare Diseases Academy Awards in recognition of ...

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August 21, 2020
rare

Rare Skeletal Disorders may be rare, but they affect millions worldwide

There are over 300 million people living with rare diseases around the world, affecting 3.5% - 5.9% of the worldwide population. Approximately 72% of rare diseases are genetic with 70% ...

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February 28, 2020
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