Rare Disease Day, marked on the last day of February each year, is a global opportunity to raise awareness for rare diseases that, although rare, affect 300 million people worldwide ...
February 29, 2024
Experts from the International Osteoporosis Foundation have developed a 15-question survey with the aim of assessing international perspectives and experience on the management of rare phosphate-related conditions known as hypophosphatemic ...
January 24, 2023
The International Osteoporosis Foundation (IOF) Skeletal Rare Diseases (SRD) Academy has today presented awards to young investigators at the virtual World Congress on Osteoporosis, Osteoarthritis, and Musculoskeletal Diseases, taking ...
March 24, 2022
A significant proportion of rare diseases specifically involves the skeletal system, with more than 430 genetic disorders of the skeleton identified to date. These include disorders such as osteogenesis imperfecta ...
February 28, 2022
The International Osteoporosis Foundation (IOF) Skeletal Rare Disease Academy has recognized research excellence in the field by presenting Awards to young researchers who have submitted outstanding abstracts to the virtual ...
August 27, 2021
On Rare Disease Day, February 28, the International Osteoporosis Foundation (IOF) will urge healthcare authorities worldwide to act on behalf of the millions of people affected by rare diseases, including ...
February 26, 2021
Thanks to major progress in the understanding and management of rare congenital diseases and syndromes, many patients with these rare disorders are now living longer lives. With this progress it ...
January 11, 2021
Hoy, durante el Congreso Mundial 2020 sobre Osteoporosis, Osteoartritis y Enfermedades Musculoesqueléticas, cinco investigadores recibieron los primeros premios de la Academia de Enfermedades Esqueléticas Raras de la International Osteoporosis ...
August 21, 2020
Las revisiones invitadas desarrolladas por investigadores líderes brindan información de vanguardia sobre los mecanismos subyacentes del metabolismo del fosfato y discuten los avances en el conocimiento y el manejo de ...
August 18, 2020
The International Osteoporosis Foundation (IOF) has announced the launch of a new initiative to promote awareness, provide education and training, and support research advances related ...
August 19, 2020
Remarkable progress in our understanding of phosphate metabolism has been made over the last two decades, and this in turn has led to significant advances ...
August 17, 2020
Today, at the 2020 World Congress on Osteoporosis, Osteoarthritis and Musculoskeletal Diseases, five investigators were awarded the first International Osteoporosis Foundation (IOF) Skeletal Rare Diseases Academy Awards in recognition of ...
August 21, 2020