The International Osteoporosis Foundation is the world’s largest non-governmental organization dedicated to the prevention, diagnosis, and treatment of osteoporosis and related musculoskeletal diseases.
Our vision is a world without fragility fractures, in which healthy mobility is a reality for all.
To promote bone and musculoskeletal health as a worldwide priority.
KEY IOF GOALS AND PRIORITIES
The International Osteoporosis Foundation (IOF) was launched in 1998, tracing its roots to its predecessor organizations: the European Foundation for Osteoporosis (EFFO), created in 1987, and the International Federation of Societies on Skeletal Diseases (IFSSD), established in 1995.
Osteoporosis was not officially acknowledged and defined as a disease by the WHO until 1994. Since its foundation, IOF has led the osteoporosis movement in increasing knowledge and awareness of the disease among all stakeholders worldwide.
The European Commission (EC) issues a report and recommendations for action against osteoporosis in the European Community. EFFO and later IOF assists in the publication and dissemination of the report.
Her Majesty Queen Rania of Jordan becomes IOF patron (until 2012). IOF organizes the 5th Worldwide Conference of Osteoporosis Patient Societies in cooperation with Osteoporosis Canada and thereafter continues to organize the conferences in cooperation with member societies.
Following the publication of the first audit report, which showed disappointing progress in Europe since 1998, IOF initiated the launch of the of European Parliament Osteoporosis Interest Group, which issued a ‘Call to action’ to spur government action against osteoporosis in Europe. Following the publication of the first audit report, which showed disappointing progress in Europe since 1998, IOF initiated the launch of the of
IOF was awarded a grant from the EC for a policy project entitled Call to Osteoporosis Action. This project brought together policy makers from the European Union and its member states, and osteoporosis experts, to form an EU Osteoporosis Consultation Panel.
The National Osteoporosis Foundation (USA) joins IOF, whose membership now represents all regions of the world. IOF offers the inaugural IOF Linda Edwards Award - the first award to recognize the work of new osteoporosis patient societies.
For the first time, IOF stages the IOF World Congress on Osteoporosis outside of Europe or North America. The congress is held in Rio de Janeiro, Brazil. The US Surgeon General issues the first report on osteoporosis in the USA, helping to raise attention to the disease in the USA and around the world.
IOF establishes 'IOF Diagnosis Course' with optional densitometry certification (until 2012). IOF's Bone Appétit World Osteoporosis Day campaign is awarded for its excellence.
The Fracture Risk Assessment Tool (FRAX), a new method to assess 10-year fracture risk, is implemented and IOF provides assistance in outreach and development. The CSA establishes Working Groups to focus research efforts and promote the publication of IOF position statements on various important topics.
The IOF World Wide Conference of Osteoporosis Patient Societies is held in China for the first time. The publication of the Asian Audit report, quantifying the burden and status of osteoporosis in Asia for the first time, was the first in a series of regional audits that have had immense media and policy impact.
IOF holds its first IOF Regionals meeting. The 1st Asia-Pacific Osteoporosis Meeting is held in Singapore. IOF also opens its new regional office in Singapore. The first IOF Young Investigator Awards are presented.
IOF holds the 1st Middle East & Africa Osteoporosis Meeting in Dubai and concurrently publishes the Middle-East & Africa Regional Audit and a regional office for the Middle-East & Africa is opened in Dubai. Regional Advisory Councils are elected in Asia, the Middle-East & Africa and in Latin America. IOF issues its first monthly e-newsletter to highlight the latest IOF activities.
The election of a new Board featured, for the first time, equitable regional representation with four representatives from each of the five regions. IOF was granted Roster Consultative Status with the Economic and Social Council of the United Nations. Launch of new joint IOF-ISCD international course, Osteoporosis Essentials.
IOF launches Capture the Fracture, a global campaign to prevent secondary fractures through the implementation of Fracture Liaison Services worldwide; the CTF Best Practice Framework was published. 2nd Asia-Pacific Regional Audit launched in Hong Kong at regional meeting.
IOF Regionals 5th Asia-Pacific Osteoporosis Meeting in Taipei. Influential European Union (EU27) and SCOPE reports launched with media outreach.
IOF joins the Non-Communicable Diseases Alliance (NCDA) Supporters Consultation Group. New focus on Skeletal Rare Diseases within IOF’s science work plan. First CTF webinar held, launching ongoing series of educational webinars.
Capture the Fracture launches Mentorship Programme and onsite training. Pilot-course on Skeletal Rare Diseases held.
Launch of the IOF Global Patient Charter, calling for the rights of all patients to timely diagnosis, treatment, and secondary fracture prevention and care; Publication of 1st edition of the IOF Compendium of Osteoporosis a reference report for all stakeholders in the field.
Capture the Fracture reaches the 300 FLS milestone. IOF launches the Calcium Map and a new European policy report ‘Broken bones, broken lives’.
IOF launched the new IOF Osteoporosis Risk Check, a fast and easy tool to check for key osteoporosis risk factors, and the Give Patients a Voice video contest. World Osteoporosis Day saw the launch of the second edition of the IOF Compendium of Osteoporosis.
IOF announced the launch of the Capture the Fracture Partnership supported by Amgen and UCB in collaboration with the University of Oxford. The global initiative aims to drive implementation of Post-fracture Care Coordination Programs for the prevention of secondary fractures.
The International Osteoporosis Foundation’s Board comprises four representatives from each of five regions of the world. Where a region has an IOF administrative office, two Board Members are elected by the region, with the remaining two elected by the global membership. Where a region doesn’t have an IOF administrative office, all four Board Members are elected by the global membership. Board members are elected for a renewable term of four years and meet twice a year.
Cyrus Cooper leads an internationally competitive programme of research into the epidemiology of musculoskeletal disorders, most notably osteoporosis. He is Professor of Rheumatology and Director of the MRC Lifecourse Epidemiology Unit; Vice-Dean of Medicine at the University of Southampton; and Professor of Musculoskeletal Science at the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford. He has published extensively (over 1000 research papers, h-index 209) on osteoporosis and rheumatic disorders and pioneered clinical studies on the developmental origins of peak bone mass. In 2015, he was awarded an OBE for services to medical research.
The Executive Committee
The Ethics Committee
The Ethics Committee is an independent body whose responsibility is to ensure the ethical integrity of IOF as an organization, including as it relates to the safety and well-being of the IOF constituency, comprised of patients, healthcare practitioners, scientific experts, IOF staff, and member national societies.
The ethics committee can be called upon in any situation deemed necessary, and have the ability to allow/disallow clauses, contracts, partnerships, events, etc. in a situation where it conflicts with the ethics and standards of the International Osteoporosis Foundation
The International Osteoporosis Foundation (IOF) works to support its Member Societies through a regional structure which includes a Regional Advisory Council (RAC) in four designated regions: Africa (AFR), Asia Pacific (APAC), Middle East and Africa (MEAf), and Latin America (LA). The primary mission of each RAC is to support the capacity of member societies to develop programmes and policies targeted to the specific needs of each region.
- Leith Zakraoui TUN (Chair)
- Motare Henry Efamba Nongo CMR
- Tereza Hough ZAF
- Yasser El Miedany EGY
- Ngozi Rosemary Njeze NGA (Deputy Chair)
- Tobias de Villiers ZAF
- Joon Kiong Lee MYS (Chair)
- Manoj Chadha IND
- Manju Chandran SGP (Deputy Chair)
- Edith Ming-Chu Lau HKG
- Tony Setiabudhi IDN
- Atsushi Suzuki JPN
- Keh-Sung Tsai TWN
- Thanut Valleenukul THA
- Weibo Xia CHN
EX-Officio RAC MEMBERS
- Peter Ebeling AUS
- Manju Chandran SGP
- Ambrish Mithal IND
- Toshikata Nakamura JPN
Middle East Region
- Nizar Abdulateef IRQ
- Bagher Larijani IRN
EX-Officio RAC MEMBERS
- Gemma Adib SYR (Chair)
- Basel Masri JOR
- Youssef Saleh SAU
Latin America Region
- Maria Belen Zanchetta, Southern Cone
- Luis Vidal Neira, Andina (Chair)
- Adriana Orcesi de Pedro, Brazil
- Adriana Medina, Caribbean
- Sonia Cerdas, Central America
- Victor Mercado Cárdenas, Mexico
EX-Officio RAC MEMBERS
IOF BOARD MEMBERS
- Claudia Campusano, Chile
- Patricia Clark, Mexico
- Marise Lazaretti Castro, Brazil
- Osvaldo Daniel Messina, Argentina
- Bruno Muzzi Camargo
- Jorge Morales Torres
- Cesar Bogado
As CEO of IOF, Philippe Halbout heads the largest global NGO in the bone field. His many areas of responsibility include strategic and programme development, as well as ensuring the Foundation’s financial growth and stability. Dr. Halbout earned his Ph.D. in immunology from the Pasteur Institute in Paris. He has extensive experience in the bone field and looks back on a successful 15-year career in the industry in which he held leadership roles within Research and Development and International Marketing, with specific focus on osteoporosis therapy. He has also been Director of Competitive Intelligence for all therapeutic areas at the global level. As IOF CEO Dr. Halbout is strongly committed to making bone health and osteoporosis prevention a healthcare priority in which healthy mobility is a reality for all.
As an international not-for-profit, non-governmental organization, IOF does not give patient or medical advice. If you have specific questions concerning osteoporosis, IOF recommends you contact an osteoporosis society in your country or your personal health care provider.
For general inquiries concerning IOF projects or programs, or to be put on our e-mailing list for news and announcements, please contact us via email@example.com