Skip to main content
  • Main menu
  • Home
  • About us
    • About IOF
    • The Board
    • The Executive Committee
    • Regional Representation
    • The Committees
    • The Staff
    • Annual Report
    • Contact us
    • Logo & Brand Guidelines
  • What we do
    • Science & Research
      • Latest News
      • Capture the Fracture®
      • Latest Projects
      • Working Groups
      • Osteoporosis Essentials Course
      • Journals
      • FRAX®
      • Awards
    • Policy & Advocacy
      • Latest News
      • World Osteoporosis Day
      • IOF Global Patient Charter
      • Improve your knowledge
      • IOF Compendium of Osteoporosis
    • Meetings & Events
    • Education
  • Educational hub
  • Thematic menu
  • Patients
    • Patients Homepage
    • IOF Osteoporosis Risk Check
    • About Osteoporosis
    • Prevention
    • Diagnosis
    • Treatment
    • Patient resources
    • Facts & Statistics
    • World Osteoporosis Day
    • Patient Stories
    • Find your National Society
    • IOF Global Patient Charter
    • Subscribe to our Newsletter
  • Health Professionals
    • Health Professionals Homepage
    • Latest News
    • Osteoporosis
      • About Osteoporosis
      • Prevention
      • Diagnosis
      • Treatment
    • Fragility Fractures
      • About
      • Epidemiology
      • Vertebral Fractures
      • Treatment & Surgery
      • Models of Care
      • Falls Prevention
    • Facts & Statistics
    • Capture the Fracture®
    • FRAX
    • Osteoporosis Essentials Course
    • Meetings & Events
    • CSA Working Groups
    • Articles & Position Papers
    • Educational Materials
    • Research Tools
    • Patient Resources
    • Journals
    • Skeletal Rare Disorders
    • Osteoporosis and Covid-19
  • Policy Makers
    • Policy Makers Homepage
    • Burden of Osteoporosis
    • Facts & Statistics
    • Fracture Liaison Services (FLS)
    • IOF Global Patient Charter
    • Policy Reports & Audits
    • IOF Alliances
    • World Osteoporosis Day
    • Patient Stories
  • Our Network
    • Our Network Homepage
    • The Committees
    • Fracture Liaison Services (FLS)
    • Latest News
    • IOF Alliances
    • Corporate Partners
    • Subscribe to our Newsletter
    • IOF Universities Network
  • IOF Platforms
  • Capture the Fracture®
  • World Osteoporosis Day
  • Osteoporosis Essentials
  • Latin America
IOF International Osteoporosis Foundation
  1. Home
  2. IOF Skeletal Rare Diseases (SRD) Academy

Social menu

  • Facebook
  • Twitter
  • LinkedIn
  • Instagram
  • YouTube
Donate
Share
  1. Home
  2. IOF Skeletal Rare Diseases (SRD) Academy

IOF Skeletal Rare Diseases (SRD) Academy

 

The IOF SRD Academy was launched in August 2020 with the mission to advance and disseminate much needed knowledge, and communicate the importance of diagnosis, management and support for rare bone diseases. Areas of activity will include scientific publications, development of educational programmes and training courses, and dissemination of informational resources for patients and healthcare professionals.

In addition, the Academy has presented the first IOF Skeletal Rare Diseases Awards which recognize research excellence among young scientists in the field. 

The IOF SRD Academy is led by Co-Chairs Professor Nicholas Harvey (Chair of the IOF Committee of Scientific Advisors) and Professor Maria Luisa Brandi (SRD Academy Convener) and includes the following expert members: Dr Manju Chandran (Singapore), Prof. Roland Chapurlat (France), Prof. Serge Ferrari (Switzerland) and Prof. Kassim Javaid (UK).

The SRD Academy reflects IOF’s longstanding commitment to advancing knowledge of skeletal rare diseases, and builds upon the extensive body of past work carried out by the former IOF Skeletal Rare Disease Working Group. This includes the publication of the ‘Taxonomy of rare genetic metabolic bone disorders’ with a related online atlas that describes more than 90 rare genetic metabolic bone disorders according to their metabolic pathogenesis, and a fact-sheet on X-Linked Hypophosphatemia (XLH) . As well, educational webinars and a series of successful training courses were held.

With this new initiative, IOF will work to raise awareness and increase knowledge of these disabling, yet neglected ‘orphan’ disorders primarily among healthcare professionals, and among the general public as well.

 

Kyowa Kirin logo

 The IOF SRD Academy is financially supported by Kyowa Kirin, which has no input into the Academy Committee, abstract selection or awards

9, rue Juste-Olivier
CH-1260 Nyon - Switzerland
+41 22 994 0100
info@osteoporosis.foundation
Follow us
  • Facebook
  • Twitter
  • LinkedIn
  • Instagram
  • YouTube
© 2023 International Osteoporosis Foundation
Cookie Policy - Privacy policy