Chair: JA Kanis

Members: B Abrahamsen, C Beaudart, F Borgström, O Bruyère, J Carey, P Clark, C Cooper, E Curtis, E Dennison, M Diaz Curiel, HP Dimai, D Gregorie, C Gregson, N Harvey, M Hiligsmann, H Johansson, P Khashayar, E Lau, M Lewiecki, P Lips, R Lorenc, M Lorentzon, E McCloskey, S Ortolani, A Papaioannou, D Prieto-Alhambra, JY Reginster, S Silverman, M Sosa, P Szulc, K Ward, N Yoshimura

The Epidemiology/Quality of Life Working Group establishes projects which aim to estimate the epidemiology of osteoporosis around the world, to evaluate the impact of fragility fractures on health-related quality of life and finally to measure the direct and indirect cost of osteoporotic fractures worldwide.

• Further develop the fracture risk assessment tool (FRAX®) by increasing its international scope and its use in clinical practice/development of FRAXplus/development of FRAX2.0
• Provide new data on the global epidemiology and impact of osteoporotic fracture worldwide
• Screening for high fracture risk and case-finding in different European countries
• Risk Communication on Osteoporosis (RICO) 
• Sub-Saharan Africa Musculoskeletal Network

1. Chotiyarnwong P., et al., Is it time to consider population screening for fracture risk in postmenopausal women? A position paper from the International Osteoporosis Foundation Epidemiology/Quality of Life Working Group. Arch Osteoporos. 2022 Jun 28;17(1):87. doi: 10.1007/s11657-022-01117-6.
2. McCloskey EV, et al., Population screening for fracture risk in postmenopausal women - a logical step in reducing the osteoporotic fracture burden? Osteoporos Int. 2022 Aug;33(8):1631-1637. doi: 10.1007/s00198-022-06419-6.
3. Lesnyak O., et al.,Quality of Life After Fragility Fracture in the Russian Federation: Results From the Russian Arm of the International Cost and Utility Related to Osteoporotic Fractures Study (ICUROS) Arch Osteoporos . 2020 Mar 2;15(1):37. doi: 10.1007/s11657-020-0699-6.
4. Dennison, E.M., et al., Fracture risk following intermission of osteoporosis therapy. Osteoporos Int, 2019.
5. Lorentzon, M., et al., Extensive undertreatment of osteoporosis in older Swedish women. Osteoporos Int, 2019. 30(6): p. 8297-1305.
6. Kanis, J.A., et al., A systematic review of intervention thresholds based on FRAX : A report prepared for the National Osteoporosis Guideline Group and the International Osteoporosis Foundation. Arch Osteoporos, 2016. 11(1): p. 25.
7. Jurisson, M., et al., Quality of life, resource use, and costs related to hip fracture in Estonia. Osteoporos Int, 2016. 27(8): p. 2555-66.
8. Silverman, S., et at., Bisphosphonate drug holidays: we reap what we sow. Osteoporosis Int, 2015. 27(3): p. 849-852.
9. Abimanyi-Ochom, J., et al., Changes in quality of life associated with fragility fractures: Australian arm of the International Cost and Utility Related to Osteoporotic Fractures Study (AusICUROS). Osteoporos Int, 2015. 26(6): p. 1781-90.
10. Kanis, J.A., et al., Worldwide uptake of FRAX. Arch Osteoporos, 2014. 9: p. 166.
11. Kanis, J.A., et al., Standardising the descriptive epidemiology of osteoporosis: recommendations from the Epidemiology and Quality of Life Working Group of IOF. Osteoporos Int, 2013. 24(11): p. 2763-4.
12. Borgstrom, F., et al., The International Costs and Utilities Related to Osteoporotic Fractures Study (ICUROS)--quality of life during the first 4 months after fracture. Osteoporos Int, 2013. 24(3): p. 811-23.
13. Kanis, J.A., et al., A systematic review of hip fracture incidence and probability of fracture worldwide. Osteoporos Int, 2012. 23(9): p. 2239-56.
14. Dimai, H.P., et al., Economic burden of osteoporotic fractures in Austria. Health Econ Rev, 2012. 2(1): p. 12.
15. Cooper, C., et al., Secular trends in the incidence of hip and other osteoporotic fractures. Osteoporos Int, 2011. 22(5): p. 1277-88.
16. Lips, P., et al., Validation of the IOF quality of life questionnaire for patients with wrist fracture. Osteoporos Int, 2010. 21(1): p. 61-70.